Not that long ago, the majority of babies who were born with heart defects did not survive their childhood. But thanks to progress in diagnosis, surgical techniques and postoperative care, up to 90 percent of these infants born today will live to become adults. Advances in the ability to treat congenital defects make prenatal diagnosis of the problem more critical than ever, says Brian Reemtsen, MD, director of the Congenital Heart Surgery Program at Mattel Childrens Hospital UCLA. For these very sick patients, he adds, optimal care is provided when we know what to expect from the patient before birth. Dr. Reemtsen stresses the importance of proper prenatal care, including routine ultrasounds. A family history of congenital heart disease and the detection of any other anomaly in the course of these screenings are among the biggest risk factors for congenital heart disease. Identifying babies with congenital heart defects in utero can be life saving, says Thomas Klitzner, MD, Ph.D., chief of pediatric cardiology at UCLA. Cutting-edge imaging technologies — such as fetal echocardiography, three-dimensional echocardiography and the ability to see increasingly smaller structures on CT scans and cardiac MRI — have greatly enhanced physicians ability to view the anatomy of the fetal and infant heart, which is roughly the size of a walnut. Hypoplastic-left-heart syndrome, among the most-common congenital defects, was considered a fatal disease two decades ago; today, though they …
Brody turned 1 year old yesterday and is doing great! We still have follow up visits with the UCLA cardiology dept, but Brody is now living a normal life.
Our son Brody is now 6 months old today and doing great. He weighs 21.5 lbs and is 28 inches long. Thanks again to the entire staff at UCLA helping Brody and us through the most difficult time in our lives.
My baby died at UCLA November 21 2007 after numerous operations at UCLA. medical. He survived the catherization and other medication but died about numerous operations like the glenn shunt, central shunt, 2 months consecutive operatons. He had a congenital heart defect called heterotaxy and he was also missing a spleen. He look so healthy the doctors didn’t think he wasn’t going to make it. He ate well, fed well I breast feed him and everything. But through all that he still died.
Wow. This is an amazing story! It would be so great to be able to see the doctors in action during the actual surgery as part of this video.