Meet Flo she has had Lupus since she was 16 years old, 31 years now. In this video you see the devastating effects of Systemic Lupus Erythematosus, with severe complications from Neuropsychiatric Lupus, which disabled her 11 years ago. She had been in a continuous flare since 1992. During that time she suffered from extreme headache pain. It was after the loss of our 2nd child Elaine at birth when her labs changed from really bad, to outrageously bad, and this is when Lupus attacked her brain. I found her circling our kitchen unable to tell me where she was going or what she was doing. That was the last day of her employment. That was the day I lost my wife. Since then she has survived being in a coma for a week and a 6 month stint in hospice. Then she survived the loss of our 8 year old son to a rare X-chromosome disease called ALD. During the 10 month battle for his life, she pushed herself to be super mom for our son. Today, she lives with, extreme head ache like pain 24/7, no short term memory, no coping skills, inability to control; the speed of her thoughts, when she will fall asleep, when she will wake up, bowel function, most cognitive functions, along with, loss of ability to balance, dislocated bones in both of her feet due to loss of connective tissue from 31 years of lupus attacks and prolonged use of prednisone, Raynaud’s phenomenon, Sjogren’s syndrome. I could go on.
Sometimes glitches happen on here.
They took away part of my comment!
…I feel like God brought him to me…because he knew that he would be the only one to handle me and take care of me when I flare up
Lisa
Hi…I have this and act just like her..however, mine last 2 weeks out of month…all my life I thought it was pms… I did not know it was milder flare ups…dear sir…Take my word, she is suffering! I am only 1/10 as bad and I dont think I could handle much more…. Continued…ran out text
Hi My name is Shelly I also have lupus mine is not the same type as hers but I under stant her anger. Please let us know how she is the video shows how lupus does people different I also under stand how hard it must be on you God bless you . You must really love her you and her will be in my prayers .thank you for showing your story keep up the video and maybe if you show her others it might make her not feel so alone.
Wow! Gary, I don’t know what to say…I’m so glad you shared this with me. It’s unfortunate that people continue to be ignorant about the effects of Lupus and make erroneous judgements based on our appearance because we don’t look sick. Thanks again for sharing.