It’s my first video so be nice 
I was really nervous, but I really want to thank John Graybill for giving me inspiration to do this. ps–sorry about the sound effects hahaha and I def should have fixed my hair
It’s my first video so be nice I was really nervous, but I really want to thank John Graybill for giving me inspiration to do this. ps–sorry about the sound effects hahaha and I def should have fixed my hair
i have mascular dystrophy and my 2 sisters also have this diseases…
I also have limb gridle, but i have the courage to fight. and i will not give up till death.
I think you did a very good job describing how you get up from soft couch and computer chair. Keep up the good work and stay happy!
Hi there.I can understand how your life is..but dont forget that you are speacial person in this world.yea
I can inform you, that everyone can help finding a cure for
Muscular Dystrophy. Please write BOINC or worldcommunitygrid into the search field of Youtube or any search engine for further info
Running the Programm BOINC on your homecomputer you donate unused computer capacity to researchers. One of their projects is about
Muscular Dystrophy. Please note that this is fundametal research. So, a cure cannot be expected too soon, unfortunately. BOINC is safe and has been working several years now.
I am very proud of you! I think you are great!!! And I would like to say that you are doing well. Also I would like to give little advice to anyone who has Limb Grid Muscular Dystrophy, please, please guys do not, do not get disappointed, keep up as much as you can.I know that it can be difficult, however try your best.
I almost cried when I saw this…what in inspiration..thank you. I too have LGMD! I’m 33 and these are so helpful to explain to others what I’m dealing with, maybe sometime I can make a video.
i have limb girdle musclar dystrophy 2i and was recently gave a wheel chair keep up the good work and keep fighting.
51hutch. You just posted similar on my profile. You just made a big mistake. You are filth.
damn i didnt know there a hot girl with the same problem as me
pls check, whether ur daughter also is effected, coz it is genetic.
Hi, i am Armando from Queretaro Mexico, my sister has Limb Girdle MD she is taking Fendel Krais therapy which is helping a lot and a week ago start with a nectar treatment from grece that is a natural complement and some aminoacids and creaine what kind of treatment are you using now??? meabe you can help us with some info…
i also have limb gurdle md but i dont know what kind. i get up the same way! lol im only 14 btw
like a service dog! how fabulous!!! keep it up and take care
lucky me
I actually know more females with this disease than men. I have read that its most common in men generally speaking of Muscular Dystrophy.
I thought that only men get this complant.
I was diagnosed with LGMD ~ 10 yrs ago. Quads would give out when jogging. I’m now 48. Can’t run or jog anymore but still get around with cane as my balance is a bit off. I normally have to push-off on chair arms or table to get out of chairs. How did they determine you had 2A form? The Dr. never really said what version I have? I really appreciate your video and hope to see more like this so we can all share our experiences with this physical “bump in the road” we are dealing with. Good work!
nice cleavage! i use one hand on the knee and one hand on the couch or chair,or even my dog (big belgian Shepperd) is getting used to being my ‘personal lifter’ on commando ‘pull’ she pulls a rope toy that I’m holding on to on on ‘steady’ she knows i’m leaning and pushing on to her!
LG’s getting creative!
Part 2
I do experience physical pain, but paracetamentol take it away. I also take magnesium when I have cramps. Thanks a lot for sharing. Wish you all the best.
JOHN GRAYBILL RULES for starting this.
Take care, love Ola
Part 1
Hi Jennifer, thanks a lot for this great video. I am rising from the coach the exact same way. To actually see others with the same medical condition makes me feel less alone. I am 31 years old, from norway and what really kills me is how I cant run around and play with my four year old daughter. What I am very interested in knowing is how old where you when you got diagnosed and how old you are now? Do you experience physical pain?
Oh and please make more videos!!!!!
haha I’m not ready for a commode yet! But I’m sure they are handy things!
Hey, I’m glad it helped
Anything you have questions on—feel free to ask. Oh, and as for the toilet part (haha) why not try a “commode”? Its a beautiful thing!!!!! It’s alot easier too!
Hey! I just tried out your technique!
IT WORKS!! Im gonna start doing that a few times over and over again. And stand like that everytime I get out of the couch and off of the toilet! I always lean towards the counter and use that to leverage myself up off the toilet. But now I can do it without holding on to the counter! Thanks so much! Hopefully soon I will get more used to it and be able to sit down in public!!
thanks so much! I don’t feel so alone now!
I have my sister that I live with has MD so I kinda got an MD friend lol. But I’ve never seen anyone else with MD. You have alot of courage for showing that on video. For me I’m always embarrassed, and when I go in public I have to make sure I can sit in a chair that I can get out of. I always feel stupid for standing up in a waiting room, cause I can’t sit in a chair without something like a table in front of me to help me get up. Im subscribing!