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Hodgkins Lymphoma Hospital Times (especially March 2010)


March 13th 2010: back from hospital, but only for the weekend. I am so sorry I had to give up on my fabulous central IV line. Frightens me to death every time I have to get another one. At least this time, they put it in while I was under GA. Thanks to anesthetist Dr. Fischer for his patience, humor and general attitude. He was the biggest help of all. Major hug. Love that he kept calling me by my first name, even afterwards, in the recovery room (when I had no intention whatsoever to wake up) and that he always walks around singing Rolling Stones classics. I suppose I will be back next week for more hospital footage, courtesy of my Hodgkin’s Lymphoma WHO grade IV. On two pics, you can see me with my brother Kay (KD). The outlook is not as grave as my choice of music will make you believe. Right now, I am NOT going to die. At least not yet. Still fighting, still dreaming, still loving life. The song is Angels on the moon by Thriving Ivory, thanks bistoprofi for the song idea. Here are the lyrics: Do you dream that the world will know your name, So tell me your name And do you care, about all the little things, Or anything at all (anything at all), I wanna feel all the chemicals inside, I wanna feel (I wanna feel), I wanna sunburn just to know that I’m alive, To know I’m alive (to know if I’m alive), Don’t tell me if I’m dying, Cause I don’t wanna know, If I can’t see the sun, Maybe I should go, Don’t wake me cause I’m dreaming, Of angels on the moon, Where everyone you

22 Comments

  1. PeppyPower says:

    @bodiedevotee I also found this song on a House MD vid and I think it fits perfectly when it comes to House MD. Well, I liked it the first second I encountered it with bisto’s Bodie-clip. Like the meaning behind, you know. Thanks again for your heartfelt comment, mate. I’ll have internet access in London, so be my guest, send mails whenever you like.

  2. PeppyPower says:

    @SFGCpt I keep my fingers crossed for you, mate. Sorry for the late reply, I spent the last days in hospital because of a vicious nosebleed. But you only have to believe you’re gonna make it. I don’t give up, I am still very active, on good days, I even ride my horse. So I’d say do as I do: Don’t give up. My friends and family keep helping me big time, that’s pretty important. If your family is there for you, that would help a big deal, really. I keep you in my prayers. Cheers, Nina

  3. bodiedevotee says:

    Hi my friend, me again…just now saw this vid…you know this song has a special meaning to me..and it’s simply fantastic you’ve chosen it for your vid ! I’m so wishing you your very own flock of angels for your fight !
    Hugs, your ‘newbie’-friend BDV

  4. SFGCpt says:

    I’ve 30 years old and ive too a lymph hodkIV…and you’re my inspiration…please send me news…i pray all day for you.

  5. SFGCpt says:

    how re you dear nina…send me news..please

  6. delale31 says:

    warum ist alles auf englisch

  7. PeppyPower says:

    @MrScaliburweb I am so happy for your daughter! She is such a beautiful young lady and I am always glad to hear that another patient has just beaten Hodgkin’s. I keep my fingers crossed for her. You are a fantastic father and you love your daughter much. My friends and family are important to me as well (so is the Lord). Thank you for your comment.

  8. PeppyPower says:

    @jinglebells1995 I know I am late in replying (spent so much time in hospital those last days). I thank you loads for your comment. Brave? Hm, I dunno. I am a fighter, yes, but brave….there are times I want to throw it all in and there are times I am very happy. I simply try and move on. But I feel honored that you called me brave. Ta, mate.

  9. MrScaliburweb says:

    Hi,

    I hope you are well. You asked me the age of my daughter. She had Hodgkin’s lymphoma at age 28. It was in 2008. He made 14 chemotherapy and 12 radiation treatments. I can say YOU that faith and love for life is a very important factor to win the Lymphoma. I send to you, all faith from Brazil, my country, and I’m sure you will soon be fully healed. God be with you and your family, EVERRRRRR .

  10. jinglebells1995 says:

    I think you are really brave. Don’ t give up.

  11. finnhere2 says:

    @PeppyPower,

    anytime! :-)
    Will try to get a fix of the lads for you both ;-) See ya!

  12. PeppyPower says:

    On my way to NY (waiting for my flight here at FFM Airport), I just wanted to say: thanks again, your comments made our day (Nina’s in hospital anyways). I’ll get in touch with ya again when I got more time on my hands. I see that you are the same animal-crazy person as Nina and I. And yeah, just send the Bisto kids along, Bodie’s rambling will definitely cheer her up, lol.

  13. finnhere2 says:

    Oh yes it’s obvious she’s one hell of a fighter allright :-) and I s’pose you’re not that bad yourself either, Kay. ;-)
    So big hugs to you both, although maybe we should send the Bisto Kids along with The Cow to cheer you both up and keep you occupied… ;-) Viele liebe Grüsse!

  14. PeppyPower says:

    finnhere (it’s Kay writing for Nina), glad you took the time to stop by and leave a comment, my sister needs every support she can get, after all those years with cancer. She is one hell of a fighter. Basically, Hodgkin’s Lymphoma is considered being an uncomplicated cancer with survival rates up to 85%. However, there is a chance even this cancer would and could metastasize, which it did with my sister (solitary metastasis in the lumbar spine). I am glad she’s still with us.

  15. PeppyPower says:

    Hallo cyberman, schreibe für meine Schwester Nina (bin ihr Bruder Kay). Sie hat schon seit 1996 ein Hodgkin Lymphom, das auch in die Wirbelsäule gestreut hat, sie hatte 2009 eine Knochenmarktransplantation und jetzt macht das Immunsystem wohl ganz schlapp. Also noch immer nicht gepackt, nach 14 Jahren. Aber du schaffst es bestimmt, denn normalerweise sind über 85 % der Neuerkrankungen eher unproblematisch. Immer feste drauf mit der Chemo und immer positiv wie Nina. Wir denken feste an dich!

  16. cyberman120 says:

    du hast es gepackt ich muss noch durch

  17. finnhere2 says:

    Hi… Well, what is there to say? Nothing more as you have said it yourself – fight, dream and love life. It has carried you this far, and it will carry you farther still. And regards to Kay whose comments on a Pros-vid made me come and have a peek at your channel. :-)
    Big hugs from Finland!!!

  18. PeppyPower says:

    btw, because some of you were asking: we glued the blue ECG electrodes I had during my GA on Cany’s back (Cany’s the duck/canard my newspaper-boss gave me years ago as a hospital lucky charm. I don’t go to hospital without her, she’s almost seen as many ORs. ERs, MRI, CT and PET scanners as I have)

  19. PeppyPower says:

    bisto, what I love most is that you said (in another context): “to see you looking so positive is amazing in between all these machines”. Thanks a lot for believing in me, but there’s a lot more to it, as we were discussing over at your YT profile place and the Bodie clip to the same song. Appearances are often deceiving. I’m not really *that* confident in between all the machinery. I don’t do MRI scans anymore when I’m awake. No way. See? A lot of things frighten me as well.

  20. bistoprofi says:

    My friend, I`m speechless again. Can`t find the right words, but it is for sure you are STRONG. It frightens to see all these machines and treatments. For me it`s a nightmare, but for you it is kind of normal. heads off my friend.
    big big hugs and love to you

  21. PeppyPower says:

    I am just a simple and pretty much normal cancer girl, nothing special, PERRUFFUS. Frightened by what modern medicine sometimes has to offer (more or less) and afraid that in between treatment and surviving, benevolence might be coming off badly. Been there, done that. I thank you for your kind words, mate, but I don’t think I am overly courageous.

  22. PERRUFFUS says:

    Nina….after watch your vid again and again…i only have words of admiration for your courage and strengh. You gave me a big shake and now i have to restate my life. Thank you so much…i found something i was searching for long time.. Love and lots of hugs for you mate

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